Free family fun and disability support for families with special needs |
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This website is dedicated to Monica who was born with multiple disabilities: cortical blindness, seizure disorders and microcephaly due to an occipital encephalocele and Chiari malformation. She has a genetic kidney disease called PKD, and hand and arm deformities from Amniotic Band Syndrome. Despite numerous developmental disabilities (due to the neural tube defect and subsequent prenatal loss of brain gray matter) Monica is a delightful, motivated and affectionate young lady who continues to learn new skills and novel ways to enjoy life. She is an inspiration to all that know her. Monica loves the water and her mom |
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